PKU Primer for Adolescents and Adults « New England Consortium of Metabolic Programs - pku in adults


PKU Information for Adults pku in adults

Many symptoms of high or unstable blood phenylalanine (Phe) levels can be improved, even if you’ve been away from the clinic or off management. You can improve your phenylketonuria (PKU) management by using every available option for getting your blood Phe levels low and stable.

Connect with other adults with PKU who can help you, or find out how you can mentor others. LEARN MORE > Maternal PKU Mentor Program; Maternal PKU Mentor Directory; Back to Care. Back to Care is here to help you find resources and support to get you back on track. LEARN MORE > .

Justification for Starting a Low PHE Diet in Adults with PKU. There are numerous reports in the scientific literature that support the value of starting a low PHE diet for previously untreated adults with PKU (or for late-treated adults who may have been on the diet for only a short time).

Results. Of over letters sent out, replies were received. Of these, 77 were positive replies from professionals who knew of one or more adults with untreated phenylketonuria; said they knew of no one with untreated by: